Sunday, January 31, 2010

I won't eat and you can't make me

January 30, 2010

Childrens Specialized Hospital and Global Congenital Diaphragmatic Hernia (CDH) offered a free webinar and seminar for parents of picky eaters titled, I Wont Eat and You Cant Make Me. This is an hour and seven minute presentation.

Certified Speech-Language Pathologist, Maurya Farah,M.A.CCC-SLP, of Childrens Specialized Hospital presented and discussed the following topics:

- Understanding the causes of behavioral feeding problems.
- Identifying specific behaviors needing management.
- Utilizing strategies to manage behavioral feeding problems.
- Question and answer session

Thursday, December 25, 2008

Episode 3 - Global CDH Holiday Dinner

On December 23, 2008 Global CDH held a holiday dinner at Morgan Stanley Children's Hospital of New York-Presbyterian. This dinner was hosted for over 50 parents, hospital staff, and families of the Neonatal Intensive Care Unit of the Children's Hospital.

Global CDH presented our Project Neonatal ICU package to a family at this event. The families baby boy is receiving treatment for the unique and specialized care related to congenital diaphragmatic hernia. The parents were presented with a package which included within our Project NICU package, some products that may help offset the costs of items which the family may require during their length of stay at the hospital. Included were gift cards which will offset gas expenditure, visits to Starbucks, and several toiletries.

The video may be viewed at this link.

Following the presentation of the gift package the families enjoyed the holiday dinner provided by the following restaurants. The entree was provided by Franco's Metro located in Fort Lee, NJ; the Kosher entree was provided by Dougie Doug's located in New York, NY; the cake was donated by Harvest Moon in Montvale, NJ; and the holiday cookies were donated by Palisades Park Bakery located in Palisades Park, NJ.

Thursday, December 11, 2008

Episode 2: Dr. Stolar Presentation at Global CDH

On November 19, 2008, Global CDH invited Charles J.H. Stolar, MD, Surgeon-in-Chief and Director of Pediatric Surgery at Morgan Stanley Children's Hospital and the Rudolph N. Schullinger in New York City, to discuss pre-term diagnosis and surgical procedures of congenital diaphragmatic hernia.

Dr. Stolar is one out of 400 pediatric specialists focused on fetus and newborn surgery within the United States. His impressive background and extensive knowledge on medicine has elevated him as one of the most important leadership figures in the hospital. His passion and desire is reflected through his motivation to save life’s within the childrens’ section of the hospital--also known as the Neonatal Intensive Care Unit (NICU).

It is common that in the adult surgeons parameter that survival rates are focused on a five-year term. However, Dr. Stolar’s specialty has extended this outlook towards a 100-year cure and he is in the business of saving whole lives. His efforts as a faculty member of the hospital has impacted the congenital diaphragmatic hernia survival rate dramatically.

Through his expertise on this unique birth defect, CDH has gone from “almost 100% mortality rate to almost all living.” His endorsement for our Global CDH initiative reflects our essential need to be well established as a nonprofit organization. As the survival rate increases new issues are being exposed and parents will require assistance with what lies ahead for the surviving child

Monday, December 8, 2008

Episode 1: Introduction to Global CDH

Our podcast introduces Global CDH, a Nonprofit Organization dedicated to sustaining and optimizing a parents ability to focus on their child’s caregiving before, during, and after the child is diagnosed with a congenital diaphragmatic hernia.